I have had a rough day. This morning my oxygen saturation started dropping and they could not figure out why or how to get them back up. The decision was made that I need to be in the ICU for closer monitoring and in case more needs to be done. My mommy and daddy are very scared and worried for me. Hopefully soon I will be ready to go back onto the floor. At the moment my levels look OK, which is at least a little reassuring.
My Aunt Shawna and her boyfriend Seth are here to visit me and unfortunately they will not be able to hold me. Max's mom Shannon came to see me today as well. While she was looking at me Sam was talking to my daddy about the word of the Lord and faith in Jesus. I just wish I felt a little better to see all my special visitors.
Please remember to say a prayer for me.
Love, Drew and Family
Watch me Grow
My Story
Hello, my name is Andrew Wade Jackson. My friends call me Drew. When my mommy was 17 weeks pregnant they found out that I have a severe heart defect called an unbalanced atrioventricular septal defect. This means I have holes in the septal wall of my heart and that only 1 of my 2 ventricles is working properly. This heart defect was caused by trisomy 21 often known as Downs Syndrome.
I was born in Kalispell on July 10th and 3 hours after birth took my first plane ride to Seattle. I was there for 10 days as they monitored my heart. Then I went home to Kalispell to be with my family.
On September 10th I was set to have a pulmonary band surgery which is normally a low risk surgery. However, they were not able to do this surgery and had to begin the "Norwood" series of surgeries. My first surgery was Sept. 11th. Early in the morning I went into surgery spending 4 hours on the heart and lung by-pass machine. When it was time to come off they could not get my heart and lungs started again. I went on a life support machine called ECMO which takes the blood from the body, gives it oxygen and sends it back. This machine would be my best friend for the next 12 days and ultimately saved my life. After many days on life support, many more in the CICU, and a while on the floor I was able to return home. At home I was on oxygen full time, had a feeding tube, and many medications. On April 28th, 2009 I had my second open heart surgery, the Glenn. This surgery was not near as eventful as the first and we were able to return home after only 15 days away. At home things have gone well. I am now without oxygen and without my feeding tube. Currently my Cardiologist is watching me closly as we wait for my next open heart surgery, the Fontan. This will take place between the ages of three and five. My mommy and daddy are nervous as this surgery is more major than the last. Given the complexity of my heart, my past history of issues, and my trisomy 21 make my surgerys more difficult. However, my mommy and daddy trust in the Lord and the Power of Prayer.
August of 2011 we decided to move to Seattle to be closer to Childrens and are adjusting to life in the big city. On Tuesday July 31st I will have my next major open heart surgery. Please remember to say a prayer for me.
Thank you for visiting my site.
Here are a few statistics about my life from July 10, 2008 to July 24,2012:
Days lived at Childrens: 55
Days in ICU: 33
Days on Life Support: 17
2 Open Heart Surgery(Complete with Heart and Lung By-Pass machine)
1 Heart Surgery
3 Heart Cauterization
1 Life Flight(Kalispell to Seattle)
1 Ambulance Ride(Kalispell Hospital to Airport)
3 Trips to Seattle
1 Cardiac Arrest(Complete with CPR and Epinephrine-This saved my life)
To many Echocardiograms to count
To many trips to Cardiologist to count
To many blood transfusions to count
Please say a prayer for me.
Love, Baby Drew and Family
I was born in Kalispell on July 10th and 3 hours after birth took my first plane ride to Seattle. I was there for 10 days as they monitored my heart. Then I went home to Kalispell to be with my family.
On September 10th I was set to have a pulmonary band surgery which is normally a low risk surgery. However, they were not able to do this surgery and had to begin the "Norwood" series of surgeries. My first surgery was Sept. 11th. Early in the morning I went into surgery spending 4 hours on the heart and lung by-pass machine. When it was time to come off they could not get my heart and lungs started again. I went on a life support machine called ECMO which takes the blood from the body, gives it oxygen and sends it back. This machine would be my best friend for the next 12 days and ultimately saved my life. After many days on life support, many more in the CICU, and a while on the floor I was able to return home. At home I was on oxygen full time, had a feeding tube, and many medications. On April 28th, 2009 I had my second open heart surgery, the Glenn. This surgery was not near as eventful as the first and we were able to return home after only 15 days away. At home things have gone well. I am now without oxygen and without my feeding tube. Currently my Cardiologist is watching me closly as we wait for my next open heart surgery, the Fontan. This will take place between the ages of three and five. My mommy and daddy are nervous as this surgery is more major than the last. Given the complexity of my heart, my past history of issues, and my trisomy 21 make my surgerys more difficult. However, my mommy and daddy trust in the Lord and the Power of Prayer.
August of 2011 we decided to move to Seattle to be closer to Childrens and are adjusting to life in the big city. On Tuesday July 31st I will have my next major open heart surgery. Please remember to say a prayer for me.
Thank you for visiting my site.
Here are a few statistics about my life from July 10, 2008 to July 24,2012:
Days lived at Childrens: 55
Days in ICU: 33
Days on Life Support: 17
2 Open Heart Surgery(Complete with Heart and Lung By-Pass machine)
1 Heart Surgery
3 Heart Cauterization
1 Life Flight(Kalispell to Seattle)
1 Ambulance Ride(Kalispell Hospital to Airport)
3 Trips to Seattle
1 Cardiac Arrest(Complete with CPR and Epinephrine-This saved my life)
To many Echocardiograms to count
To many trips to Cardiologist to count
To many blood transfusions to count
Please say a prayer for me.
Love, Baby Drew and Family
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7 comments:
Dearest little greatgrandbaby
Andrew,
I am sorry to hear you are having
some problems. Hopefully you will
get them all overcome just as you
always have before. It seems like
when all is going well, we get busy and forget to pray as we should. We will try harder to
not let other things take over
our number one priority, little
baby Andrew.
God Bless that precious heart and
those lungs and let them function
perfectly in Jesus Name, the Name
that is over everything that ever
has been named. Heart problems,
lung problems have to go before
the mighty name of Jesus.
We thank you Jesus for watching
over our baby. We ask God to send
his healing angels and Holy Spirit
to surround our baby. We cover this baby with the precious blood
of Jesus and by His Stripes this
little baby Andrew is healed, in
the Name of Jesus.
Love forever,
Grandma Great
Aw, Baby Andrew, we are sad to hear you are back in ICU. But are happy the medical team is being so careful with you and love you and are watching you closely. We are glad you had company today. Shannon and Sam are very good people. Glad your Aunt was there to visit with you. Give Mommy and Daddy a smile, they love you so much. We are praying for you little one.
Huge, Terri and Charles
Just a quick note to say that we are still praying for you, your health, and your family!
Anna and Derek Thornton (friends of Max)
Little Baby Drew, its a rough ride isn't it. You are just fighting as hard as you can aren't you. We are all praying for you every night, I can't wait to meet you. Your mommy and Daddy are so proud of you. Gods is cradling you in his hands. Be strong little boy, Kalispell needs its littliest Jackson back. Heidi McAtee
Baby Drew,
I'm so sorry to hear that you've had a rough day. I think about you every day. You are an angel to your mom and dad. Even though I haven't met you yet, I love you and pray for your quick recovery.
Jennifer
Baby Drew,
We have been praying for you ever since Max told us about you. We check your blog daily for updates. We pray that you will get back to the floor quickly and that your body is just adjusting to working on it's own.
Our son Jake was a preemie and he had reflux. He slept in his car seat for several months, so he understands a little about the "wedge".
We pray the Great Physician does a miracle healing work in your body right now. That your heart and lungs work as your Creator intended them to. May God give you supernatural strength to recover quickly.
We are thankful that God gave you to a family that loves you so deeply. It is amazing to think that God could actually love you more. He holds you in the palm of His hand little Drew.
Your friends,
Debbie, Scott & Jakey Cauthorn
(Max sent us)
i dont have all the beautiful words that everyone else has, but james and i are thinking about you everyday. we miss you and cant wait for you to come home. we pray for you and your mommy and daddy. they are very strong people and they love you very much, as do the rest of us. stay strong buddy
love,
amber and james
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